Tribute to ‘amazing’ little Georgie

A mum has paid tribute to her brave little girl, who suffered from a rare genetic condition but never stopped smiling.

Madeline Wyse, a teacher at Thomas Alleyne School in Stevenage, said Georgina, who died on March 27 at just three-years-old, was “amazing”.

The toddler, known to family and friends as Georgie, was one of only a few hundred people in the world to suffer from a neurological condition which causes excessive vomiting, difficulty swallowing and poor co-ordination.

Mrs Wyse, 30, who lives in Cambridgeshire with her husband Ian, said: “She went to bed on Saturday night. We had one of those video monitors and she went straight to sleep. When I went in (to her room) in the morning, she had gone.

“She is asleep now. She never complained. Towards the end she developed headaches a little bit, but she never cried over them. She was amazing.

“We are getting used to it being just the two of us, but it is a comfort knowing she is not suffering any more.”

Mourners gathered at her funeral on Monday dressed in pink and yellow, Georgie’s favourite colours, and passages were read from her favourite children’s story The Gruffalo. Her coffin was also decorated with pictures from the book.

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Georgie was initially diagnosed with reflux when she began being sick when she was two. But after she lost a third of her body weight over the course of five months, alarm bells rang.

Six months ago, her parents were told she had a form of leukodystrophy called Alexander Disease, a neurological condition with no known cure or treatment. Doctors said she had a life expectancy of five to 10 years, but complications meant her condition deteriorated rapidly.

She was still at her pre-school which she loved, the day before she died her mum said.

Staff and pupils at Thomas Alleyne were among those who raised funds to make Georgie’s time a happier one.