Stevenage girl, five, in sponsored colour run to raise money for terminally ill dad’s treatment
- Credit: Archant
The five-year-old daughter of a man diagnosed with motor neurone disease will be taking part in a sponsored colour run at her school on Friday in a bid to raise money for treatment to help extend her dad’s life.
Scott Everett, who lives in Stevenage, was given the devastating diagnosis in March and told he has less than three years to live.
The 46-year-old is finding it increasingly difficult to speak clearly as he has progressive bulbar palsy, which affects speech and swallowing before spreading to the rest of the body.
Scott’s family are raising £30,000 so he can have stem cell treatment in Moscow, as well as a new drug called Radicut, in a bid to prolong his life so he can spend as much time as possible with his daughters – two-year-old Evie and five-year-old Anna.
Anna, a pupil at Roebuck Primary School and Nursery in Stevenage, is taking part in a sponsored colour run at her school tomorrow as part of a series of fundraising events which have so far raised more than £22,000.
A fundraising golf day will be held at Hertfordshire Golf and Country Club in Broxbourne on July 26 and, following an appeal in the Comet, a DJ has now volunteered to provide an evening disco – with many others offering to stand in reserve.
Other fundraising activities have so far included an ice bucket challenge, cake sale and quiz night.
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Professional photographer Mark Ian Ridley is holding a family photo shoot for the Everetts to make some cherished memories, all free of charge.
The Everett family have been overwhelmed by the support they have so far received. Scott’s wife, Catherine, said: “I’m not from Stevenage – I’ve lived here 14 years – but I have never felt so much a part of a community. Stevenage has a tremendous community spirit.”
Tickets for the golf day are now on sale at £65 each, with 48 places available, and include 18 holes, food, evening entertainment and an auction. To book a place, email firstname.lastname@example.org.
A Facebook page, ‘Fundraising for Scott’, has been set up to co-ordinate the fundraising events, and donations can be made by visiting gofundme.com/scott-needs-stem-cells.