Doctors discovered that Skylar McLean had bleeding on her brain at just six weeks old, and needed to be put into a coma. Mum Sue, 39, said: Weve never been more scared than the moment the doctors told us they had to put Skylar into a coma to save her life. We were so close to losing her. She was in the coma for eight days and every minute of each of those days we didnt know if our beautiful little girl was going to make it. We couldnt even hold her. When she was born, Skylar was a happy baby who had a beaming smile. But since the seizures and the damage they have caused, that has now caused to her brain, she hasnt smiled again. Its heartbreaking. Skylar was diagnosed with dystonia, which causes her to have severe muscle spasms, as well as cerebral palsy, a rare form of diabetes and is registered blind. Dad Duncan said: Because of the pain caused by her illness, Skylar can barely sleep and screams most of the day and night. She has been fighting all her life and so fighting is all she knows, she cant switch off. The doctors now think that its possible that part of her brain wasnt properly developed or that the blood could have been on her brain before she was even born. We dont know though, and we never will. What has happened to us as a family is devastating. I wouldnt wish it on my worst enemy. Skylar cant do most of the things other children of her age can she cant sit up or play with toys. Thats hard to accept, but this Christmas all we really want is to see our baby smile again. Sue added that Keech Hospice Care came into their lives when they were emotionally drained and at breaking point. We dont know where wed be without them, Sue said. Because of Keech Hospice Care, Skylars transformation has been amazing. Within a few hours on our first visit, the hospices doctors and nurses had changed her medication to help manage her pain.To donate to the hospice, or for more information, go to www.keech.org.uk/donate.