Letchworth couple's fundraising appeal after unborn baby's diagnosis
PUBLISHED: 07:01 24 August 2018
A Letchworth couple have started a fundraising page after hearing the "daunting news" that their unborn child has an extremely rare condition.
A Letchworth couple have started a fundraising page after hearing the “daunting news” that their unborn child has an extremely rare condition.
Jade and Luke Costa found out that their baby boy has sacral agensis syndrome, causing him to have a missing tailbone, an enlarged kidney and clubbed feet.
Jade told the Comet: “Me and Luke have two beautiful daughters, and had planned for another baby in 2016.
“Unfortunately, we suffered two miscarriages and decided to take a break from trying so hard – but we got pregnant very soon into our break.
“It had been a beautiful pregnancy up until the 20-week scan, where we were told our boy had an enlarged kidney and his legs seemed to be fixed in a frog-like position.”
Jade was asked to come back for a second scan with a specialist the following day, when it was confirmed that the baby – named Rowan – had a multi-cystic kidney. “They said it was hard to see the extent to the problem with his legs,” the 31-year-old said.
“It was either spina bifida or sacral agenesis.”
The couple were sent the University College London Hospital, where it was confirmed to be sacral agenesis, which affects only one in 25,000 babies.
Jade said: “It was daunting at first. I cried, not for myself but for Rowan.
“I thought of how he will watch his sisters doing activities he may not be able to do.
“But, we quickly got over those feelings, it was the better of the two diagnoses on the table for his situation.”
Jade said she started the JustGiving page to help with several financial strains they will be faced with, including travel costs to three different London hospitals – UCLH, Great Ormond Street and The Royal London Hospital – as well as costs for medical equipment after Rowan is born.
Specialists have predicted that he will need a walking aid, wheelchair and possibly prosthetics.
Jade continued: “Since starting the JustGiving page we have had messages from strangers sending thoughts and love and information as to where we can get further help for Rowan. We are ever so grateful for the support so far.”
To donate to the JustGiving page, visit justgiving.com/crowdfunding/wheelsforrowan.