Fundraising push in memory of six-month-old Billy

A GRANDMOTHER is on a fundraising push in memory of her six-month-old grandson, who sadly passed away from a rare muscular condition.

Sonya Brett, of East Close, Hitchin, wants to raise awareness of the condition Spinal Muscular Atrophy (SMA), which Billy died from three years ago.

The youngster, whose mother Angela lives in Arlesey, was cared for at the Paediatric Intensive Care Unit (PICU) at Addenbrooke’s Hospital in Cambridge and Keech Hospice, near Luton.

Sonya decided she wanted to do something to pay these places back and educate people on the condition, so she organised an Easter Extravaganza last Thursday, with a fancy dress competition, egg hunts, crafts and cake stalls, and children’s activities.

“No-one seems to have heard of the disease, so I’m doing this to make people aware and to make some money too if I can,” said Sonya.


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“Fun was had by all that were there. The kids all had a great time, and the little girls that won the fancy dress were more than happy. Everyone enjoyed it.

“We managed to let some people know about SMA, which is so important to me.”

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Sonya is also looking into the possibility of holding a stall at some fairs this summer, including one at Walsworth festival.

She will also hold a series of coffee mornings at Walsworth Community Centre every other Thursday from April 28, between 10 and 11.30am.

Proceeds from Sonya’s events will be split between Addenbrooke’s Hospital, Keech Hospice Care and The Jennifer Trust.

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