Charity golf day raises £5,000 for Shefford boy with rare life-limiting conditions

PUBLISHED: 06:59 10 July 2018

Jacob, 3, from Shefford, suffers from Davet Syndrome. Picture: Christine Perkins

Jacob, 3, from Shefford, suffers from Davet Syndrome. Picture: Christine Perkins

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A charity golf day has raised more than £5,000 for a young boy suffering from a rare epileptic condition.

The charity golf day winning team, David & Fiona Holden (left) and Mary & Ray Burroughs. Picture: Christine PerkinsThe charity golf day winning team, David & Fiona Holden (left) and Mary & Ray Burroughs. Picture: Christine Perkins

The event at Chesfield Downs in Graveley was organised by the family of three-year-old Jacob Alger from Shefford who suffers from Dravet Syndrome – caused by a gene mutation that leads to hospitalising seizures.

The chosen causes were Dravet Syndrome UK and Jacob’s Dreams.

His grandmother Christine Perkins told the Comet: “We had more than 40 golfers and we were joined in the evening by other guests.

“Prizes were awarded to the top three teams, and there were individual prizes for the highest scoring lady and gentleman.

“We were blessed with good weather so, thankfully, the golfers needed suntan lotion rather than waterproofs.”

Fewer than 500 people in the UK suffer from Dravet Syndrome, which is a life-limiting illness that can also lead to autism, losing the ability to walk and talk, and catastrophic seizures.

To donate to Dravet Syndrome UK, see dravet.org.uk.

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